Friday, May 2, 2008

Joining the Experts

Hello All

Last Saturday, another West Nile Virus Neurological Syndrome (WNVNS) survivor and his spouse invited Isabel to attend the Annual General Meeting of the Saskatchewan Therapists' Assistants at Wascana.  This couple who became friends of Mum after she moved to Wascana were the Guest Speakers at this event.  Their presentation focused on the theme of FAITH, HOPE AND THERAPY ~ words on a sign in the Outpatient Rehabilitation Department of Wascana.  They had spent many months in this room since last September.  Isabel was touched that they included her in their reflections as she enthusiastically listened to their one hour presentation.

At times this couple can hardly believe that they are now experts on WNVNS.  How did this happen? How did this story become their lives? These are questions that Mum as another expert asks as well.  We have become experts in our own right having survived the acute illness of WNVNS and as we continue to do the research that is necessary for advocacy. This is especially true when there are no longitudinal studies about the prognosis of the syndrome. We are making history.

A year ago we would not have believed that this could be Isabel's story.  

Three months ago we could not have believed that Mum would be well enough to head out to such an event.  For this we are thankful as a proactive medical staff continue to support Isabel's recovery with a variety of therapies.

Thanks to all of you for your ongoing greetings that help carry us through every week.

Isabel and the Gang

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